{"id":1669,"date":"2021-02-28T19:57:57","date_gmt":"2021-02-28T18:57:57","guid":{"rendered":"https:\/\/wolfhirschhorn.com\/sitioweb\/?p=1669"},"modified":"2022-06-03T13:28:52","modified_gmt":"2022-06-03T11:28:52","slug":"pertenecemosalmundo-asociaciones-de-eerr","status":"publish","type":"post","link":"https:\/\/wolfhirschhorn.com\/sitioweb\/pertenecemosalmundo-asociaciones-de-eerr\/","title":{"rendered":"#PertenecemosAlMundo Asociaciones de EERR"},"content":{"rendered":"<p>El 28 de febrero, D\u00eda Mundial de las Enfermedades Raras, un grupo de asociaciones de las llamadas enfermedades poco frecuentes nos unimos para compartir un mensaje de positivismo, porque creemos en las personas y en el derecho a vivir plenamente y ser felices.<\/p>\n<p><strong>Participamos:<\/strong><\/p>\n<p><a href=\"https:\/\/www.22q.es\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/www.22q.es\/&amp;source=gmail&amp;ust=1645295612283000&amp;usg=AOvVaw2l54neJQTLmt1c13HweRuH\"><strong>Asociaci\u00f3n S\u00edndrome 22q11<\/strong><\/a><\/p>\n<p><strong><a href=\"https:\/\/www.sindromekabuki.es\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/www.sindromekabuki.es\/&amp;source=gmail&amp;ust=1645295612283000&amp;usg=AOvVaw3_63ed9SvUW2SeeOb_6RiB\">Asociaci\u00f3n Espa\u00f1ola de Familiares y Afectados por S\u00edndrome de Kabuki<\/a><\/strong><\/p>\n<p><strong><a href=\"https:\/\/www.aesip.es\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/www.aesip.es\/&amp;source=gmail&amp;ust=1645295612283000&amp;usg=AOvVaw3KdP-vlPPLN9W4pr7Rmn4d\">AESIP \u2013 Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Poland<\/a><\/strong><\/p>\n<p><strong><a href=\"https:\/\/rett.es\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/rett.es\/&amp;source=gmail&amp;ust=1645295612283000&amp;usg=AOvVaw1T-1JKF5rcPEdeBoWBZU-z\">AESR &#8211; Asociaci\u00f3n Espa\u00f1ola de S\u00edndrome de Rett<\/a><\/strong><\/p>\n<p><strong><a href=\"https:\/\/wolfhirschhorn.com\/sitioweb\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/wolfhirschhorn.com\/sitioweb\/&amp;source=gmail&amp;ust=1645295612283000&amp;usg=AOvVaw3prJLv-GjMvWt5Ft_zrg59\">AESWH \u2013 Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Wolf-Hirschhorn<\/a><\/strong><\/p>\n<p><strong><a href=\"http:\/\/amcme.es\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=http:\/\/amcme.es\/&amp;source=gmail&amp;ust=1645295612283000&amp;usg=AOvVaw0KhONYi7S2LZlyYOVbdG1I\">AMCME, Asociaci\u00f3n Macrocefalia con Malformaci\u00f3n Capilar de Espa\u00f1a<\/a><\/strong><\/p>\n<p><strong><a href=\"https:\/\/www.sindromewilliams.org\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/www.sindromewilliams.org\/&amp;source=gmail&amp;ust=1645295612283000&amp;usg=AOvVaw0zIqJuQAstmDTYisCDJU-3\">ASWE &#8211; Asociaci\u00f3n S\u00edndrome Williams de Espa\u00f1a<\/a><\/strong><\/p>\n<p><strong><a href=\"https:\/\/www.creciendoconnoonan.com\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/www.creciendoconnoonan.com\/&amp;source=gmail&amp;ust=1645295612283000&amp;usg=AOvVaw1PmF1d0U6DdF-1aHt9AWqL\">Creciendo con NOONAN<\/a><\/strong><\/p>\n<p><strong><a href=\"https:\/\/www.rubinsteintaybi.es\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/www.rubinsteintaybi.es\/&amp;source=gmail&amp;ust=1645295612283000&amp;usg=AOvVaw2vsxf70mPTKA4s0ZSGhuiJ\">AESRT \u2013 Asociaci\u00f3n Espa\u00f1ola S\u00edndrome Rubinstein-Taybi<\/a><\/strong><\/p>\n<p><strong><a href=\"https:\/\/www.facebook.com\/asociacionSATB2\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/www.facebook.com\/asociacionSATB2\/&amp;source=gmail&amp;ust=1645295612284000&amp;usg=AOvVaw0xYju01pJA_ibJ6ziCE0xe\">Asociaci\u00f3n SATB2<\/a><\/strong><\/p>\n<p><strong><a href=\"https:\/\/www.facebook.com\/yonemalinica\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/www.facebook.com\/yonemalinica\/&amp;source=gmail&amp;ust=1645295612284000&amp;usg=AOvVaw0DDM0M3xQFfx0WI5OAH3LB\">Yo Nemal\u00ednica<\/a><\/strong><\/p>\n<p><strong>ENLACE AL VIDEO <a href=\"https:\/\/youtu.be\/qxPmy5VRoVc\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/youtu.be\/qxPmy5VRoVc&amp;source=gmail&amp;ust=1645295612284000&amp;usg=AOvVaw1aCO2-Vr6jIh-gw8ugxev1\">#PertenecemosAlMundo<\/a><\/strong><\/p>\n<p>#pertenecemosalmundo #somoscapaces #diadelasenfermedadesraras #rarediseaseday<\/p>\n","protected":false},"excerpt":{"rendered":"<p>El 28 de febrero, D\u00eda Mundial de las Enfermedades Raras, un grupo de asociaciones de las llamadas enfermedades poco frecuentes nos unimos para compartir un mensaje de positivismo, porque creemos en las personas y en el derecho a vivir plenamente&#8230;<\/p>\n","protected":false},"author":3,"featured_media":1670,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[3,72],"tags":[],"class_list":["post-1669","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias","category-visibilidad"],"_links":{"self":[{"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/posts\/1669","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/comments?post=1669"}],"version-history":[{"count":0,"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/posts\/1669\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/media\/1670"}],"wp:attachment":[{"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/media?parent=1669"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/categories?post=1669"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/tags?post=1669"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}