{"id":1313,"date":"2020-02-29T20:01:45","date_gmt":"2020-02-29T19:01:45","guid":{"rendered":"https:\/\/wolfhirschhorn.com\/sitioweb\/?p=1313"},"modified":"2022-06-03T12:57:07","modified_gmt":"2022-06-03T10:57:07","slug":"dia-mundial-de-las-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/wolfhirschhorn.com\/sitioweb\/dia-mundial-de-las-enfermedades-raras\/","title":{"rendered":"D\u00eda Mundial de las Enfermedades Raras"},"content":{"rendered":"<p><strong>D\u00cdA MUNDIAL EERR<\/strong><\/p>\n<p>El 29 de febrero celebramos a nivel mundial el D\u00eda de las enfermedades poco frecuentes.<\/p>\n<p>En Espa\u00f1a, alrededor de 3 millones de personas conviven con una enfermedad rara, que en su mayor\u00eda son cr\u00f3nicas y degenerativas, en un 70 % de los casos comienzan a edades precoces, en un 80 % producen discapacidad y en casi la mitad el pron\u00f3stico vital est\u00e1 en juego.<\/p>\n<p>La investigaci\u00f3n solo se centra actualmente en el 20% de las + de 6.000 Enfermedades Raras conocidas, 4.800 de ellas no cuentan con ning\u00fan proyecto&#8230;\u00bb<\/p>\n<p>A d\u00eda de hoy, Europa cuenta con 108 medicamentos hu\u00e9rfanos autorizados y comercializados para tratar las m\u00e1s de 6.000 enfermedades raras, de los que en Espa\u00f1a solo se dispone de 58.<\/p>\n<p>&nbsp;<\/p>\n<h4>REPORTAJE RTVE<\/h4>\n<div>\n<p><a href=\"https:\/\/www.rtve.es\/noticias\/20200212\/80-enfermedades-raras-sigue-sin-investigacion-solo-5-recibe-tratamiento\/2000789.shtml\" target=\"_blank\" rel=\"noopener\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-1314\" src=\"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-content\/uploads\/imagen-reportaje.jpg\" alt=\"\" width=\"552\" height=\"389\" \/><\/a><\/p>\n<\/div>\n<div>\n<p>&nbsp;<\/p>\n<p>#D\u00edaMundialEnfermedadesRaras #RareDiseaseDay #HazlasVisibles<\/p>\n<p>#PorSuSonrisa #PorLaInvestigaci\u00f3n<\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>D\u00cdA MUNDIAL EERR &#8211; El 29 de febrero celebramos a nivel mundial el D\u00eda de las enfermedades poco frecuentes.<\/p>\n","protected":false},"author":3,"featured_media":1317,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[3,72],"tags":[],"class_list":["post-1313","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias","category-visibilidad"],"_links":{"self":[{"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/posts\/1313","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/comments?post=1313"}],"version-history":[{"count":0,"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/posts\/1313\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/media\/1317"}],"wp:attachment":[{"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/media?parent=1313"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/categories?post=1313"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/tags?post=1313"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}