{"id":112,"date":"2016-04-12T20:48:53","date_gmt":"2016-04-12T18:48:53","guid":{"rendered":"https:\/\/www.wolfhirschhorn.com\/sitioweb\/?page_id=112"},"modified":"2024-06-12T09:53:49","modified_gmt":"2024-06-12T07:53:49","slug":"que-hacemos","status":"publish","type":"page","link":"https:\/\/wolfhirschhorn.com\/sitioweb\/que-hacemos\/","title":{"rendered":"\u00bfQu\u00e9 hacemos?"},"content":{"rendered":"

[et_pb_section fb_built=\u00bb1″ fullwidth=\u00bbon\u00bb admin_label=\u00bbSecci\u00f3n\u00bb _builder_version=\u00bb4.16″ global_colors_info=\u00bb{}\u00bb][et_pb_fullwidth_post_title meta=\u00bboff\u00bb featured_image=\u00bboff\u00bb text_color=\u00bblight\u00bb admin_label=\u00bbT\u00edtulo Post\u00bb _builder_version=\u00bb4.16″ title_font_size=\u00bb30px\u00bb title_all_caps=\u00bboff\u00bb meta_font_size=\u00bb16″ background_color=\u00bb#009045″ parallax=\u00bbon\u00bb parallax_method=\u00bboff\u00bb custom_padding=\u00bb35px||30px|\u00bb parallax_effect=\u00bbon\u00bb module_bg_color=\u00bb#009045″ use_border_color=\u00bboff\u00bb border_color=\u00bb#ffffff\u00bb border_style=\u00bbsolid\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=\u00bb1″ admin_label=\u00bbsection\u00bb _builder_version=\u00bb4.16″ custom_margin=\u00bb30px||60px||false|false\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_row admin_label=\u00bbrow\u00bb _builder_version=\u00bb4.16″ background_size=\u00bbinitial\u00bb background_position=\u00bbtop_left\u00bb background_repeat=\u00bbrepeat\u00bb custom_margin=\u00bb20px||20px||true|false\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_column type=\u00bb4_4″ _builder_version=\u00bb4.16″ custom_padding=\u00bb|||\u00bb global_colors_info=\u00bb{}\u00bb custom_padding__hover=\u00bb|||\u00bb][et_pb_text admin_label=\u00bbTexto\u00bb _builder_version=\u00bb4.16″ background_size=\u00bbinitial\u00bb background_position=\u00bbtop_left\u00bb background_repeat=\u00bbrepeat\u00bb use_border_color=\u00bboff\u00bb border_color=\u00bb#ffffff\u00bb border_style=\u00bbsolid\u00bb global_colors_info=\u00bb{}\u00bb]<\/p>\n

Actividades de Apoyo y Respiro Familiar<\/h3>\n

Anualmente celebramos unas jornadas m\u00e9dicas y de respiro familiar, creando un espacio en el que las familias y afectados con el SWH puedan intercambiar experiencias, conocer los avances en la investigaci\u00f3n del SWH, ofrecer informaci\u00f3n en cuanto a terapias y servicios que puedan ser de inter\u00e9s para los asociados.<\/p>\n

A lo largo del a\u00f1o se proponen salidas y actividades de car\u00e1cter l\u00fadico en el que las familias, que est\u00e1n dispersas por todo Espa\u00f1a, puedan pasar alg\u00fan tiempo juntas y disfrutar de unos d\u00edas de descanso.
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Fomento de la Investigaci\u00f3n SWH<\/h3>\n

Uno de los objetivos de la AESWH desde su formaci\u00f3n ha sido promover la investigaci\u00f3n y el conocimiento del SWH. Por ello, es una de nuestras prioridades conocer m\u00e1s y mejor el SWH y tratar de mejorar la calidad de vida de los afectados y sus familias.<\/p>\n

[\/et_pb_text][et_pb_button button_url=\u00bb\/fomento-de-la-investigacion\/\u00bb button_text=\u00bbFomento de la Investigaci\u00f3n\u00bb button_alignment=\u00bbleft\u00bb _builder_version=\u00bb4.16″ custom_button=\u00bbon\u00bb button_text_color=\u00bb#ffffff\u00bb button_bg_color=\u00bb#009045″ button_border_width=\u00bb1px\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_button][et_pb_button button_url=\u00bb\/comite-cientifico\/\u00bb button_text=\u00bbComit\u00e9 Cient\u00edfico\u00bb button_alignment=\u00bbleft\u00bb _builder_version=\u00bb4.16″ custom_button=\u00bbon\u00bb button_text_color=\u00bb#ffffff\u00bb button_bg_color=\u00bb#009045″ button_border_width=\u00bb1px\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_button][et_pb_button button_url=\u00bb\/guia-del-swh\/\u00bb button_text=\u00bbGu\u00eda SWH \/ Art\u00edculos de inter\u00e9s\u00bb button_alignment=\u00bbleft\u00bb _builder_version=\u00bb4.16″ custom_button=\u00bbon\u00bb button_text_color=\u00bb#ffffff\u00bb button_bg_color=\u00bb#009045″ button_border_width=\u00bb1px\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_button][\/et_pb_column][et_pb_column type=\u00bb1_2″ _builder_version=\u00bb4.16″ custom_padding=\u00bb|||\u00bb global_colors_info=\u00bb{}\u00bb custom_padding__hover=\u00bb|||\u00bb][et_pb_image src=\u00bbhttps:\/\/wolfhirschhorn.com\/sitioweb\/wp-content\/uploads\/aeswh-08.jpg\u00bb alt=\u00bbAESWH – Asociaci\u00f3n Espa\u00f1ola del S\u00edndrome de Wolf-Hirschhorn\u00bb title_text=\u00bbAESWH – Asociaci\u00f3n Espa\u00f1ola del S\u00edndrome de Wolf-Hirschhorn\u00bb show_in_lightbox=\u00bbon\u00bb show_bottom_space=\u00bboff\u00bb align_tablet=\u00bbcenter\u00bb align_phone=\u00bb\u00bb align_last_edited=\u00bbon|desktop\u00bb admin_label=\u00bbImagen\u00bb module_id=\u00bbshadow\u00bb _builder_version=\u00bb4.23.4″ animation_style=\u00bbslide\u00bb animation_direction=\u00bbleft\u00bb animation_duration=\u00bb500ms\u00bb animation_intensity_slide=\u00bb10%\u00bb box_shadow_style=\u00bbpreset2″ use_border_color=\u00bboff\u00bb border_color=\u00bb#ffffff\u00bb border_style=\u00bbsolid\u00bb animation=\u00bbleft\u00bb sticky=\u00bbon\u00bb always_center_on_mobile=\u00bbon\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00bb1_2,1_2″ admin_label=\u00bbrow\u00bb _builder_version=\u00bb4.16″ background_size=\u00bbinitial\u00bb background_position=\u00bbtop_left\u00bb background_repeat=\u00bbrepeat\u00bb custom_margin=\u00bb20px||20px||true|false\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_column type=\u00bb1_2″ _builder_version=\u00bb4.16″ custom_padding=\u00bb|||\u00bb global_colors_info=\u00bb{}\u00bb custom_padding__hover=\u00bb|||\u00bb][et_pb_text admin_label=\u00bbTexto\u00bb _builder_version=\u00bb4.16″ background_size=\u00bbinitial\u00bb background_position=\u00bbtop_left\u00bb background_repeat=\u00bbrepeat\u00bb use_border_color=\u00bboff\u00bb border_color=\u00bb#ffffff\u00bb border_style=\u00bbsolid\u00bb global_colors_info=\u00bb{}\u00bb]<\/p>\n

Eventos Solidarios<\/h3>\n

Mediante la realizaci\u00f3n de eventos solidarios buscamos financiaci\u00f3n encaminada a respaldar la investigaci\u00f3n de la patolog\u00eda y las terapias y actividades a realizar por los afectados.<\/p>\n

En estos a\u00f1os se han llevado a cabo numerosos eventos solidarios como galas, conciertos, comidas, eventos deportivos, mercadillos, etc.<\/p>\n

As\u00ed mismo, con fines de visibilidad y sensibilizaci\u00f3n, son muchos los deportistas que han incorporado a sus equipaciones deportivas nuestro nombre, estando as\u00ed el S\u00edndrome de Wolf Hirschhorn presente en competiciones deportivas, fundamentalmente de ciclismo y running.
\n[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00bb1_2″ _builder_version=\u00bb4.16″ custom_padding=\u00bb|||\u00bb global_colors_info=\u00bb{}\u00bb custom_padding__hover=\u00bb|||\u00bb][et_pb_image src=\u00bbhttps:\/\/wolfhirschhorn.com\/sitioweb\/wp-content\/uploads\/aeswh-13.jpg\u00bb alt=\u00bbAESWH – Asociaci\u00f3n Espa\u00f1ola del S\u00edndrome de Wolf-Hirschhorn\u00bb title_text=\u00bbAESWH – Asociaci\u00f3n Espa\u00f1ola del S\u00edndrome de Wolf-Hirschhorn\u00bb show_in_lightbox=\u00bbon\u00bb show_bottom_space=\u00bboff\u00bb align_tablet=\u00bbcenter\u00bb align_phone=\u00bb\u00bb align_last_edited=\u00bbon|desktop\u00bb admin_label=\u00bbImagen\u00bb module_id=\u00bbshadow\u00bb _builder_version=\u00bb4.23.4″ animation_style=\u00bbslide\u00bb animation_direction=\u00bbleft\u00bb animation_duration=\u00bb500ms\u00bb animation_intensity_slide=\u00bb10%\u00bb box_shadow_style=\u00bbpreset2″ use_border_color=\u00bboff\u00bb border_color=\u00bb#ffffff\u00bb border_style=\u00bbsolid\u00bb animation=\u00bbleft\u00bb sticky=\u00bbon\u00bb always_center_on_mobile=\u00bbon\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00bb1_2,1_2″ admin_label=\u00bbrow\u00bb _builder_version=\u00bb4.16″ background_size=\u00bbinitial\u00bb background_position=\u00bbtop_left\u00bb background_repeat=\u00bbrepeat\u00bb custom_margin=\u00bb20px||20px||true|false\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_column type=\u00bb1_2″ _builder_version=\u00bb4.16″ custom_padding=\u00bb|||\u00bb global_colors_info=\u00bb{}\u00bb custom_padding__hover=\u00bb|||\u00bb][et_pb_text admin_label=\u00bbTexto\u00bb _builder_version=\u00bb4.16″ background_size=\u00bbinitial\u00bb background_position=\u00bbtop_left\u00bb background_repeat=\u00bbrepeat\u00bb use_border_color=\u00bboff\u00bb border_color=\u00bb#ffffff\u00bb border_style=\u00bbsolid\u00bb global_colors_info=\u00bb{}\u00bb]<\/p>\n

Merchandising<\/h3>\n

Con el merchandising conseguimos un doble objetivo: por un lado, obtener recaudaci\u00f3n para los fines de la AESWH y por otro, dar a conocer y sensibilizar a la sociedad sobre el s\u00edndrome. Pulseras, bol\u00edgrafos, camisetas, equipaciones deportivas, calendarios o loter\u00eda son algunos de los productos que se han dise\u00f1ado desde que se cre\u00f3 la asociaci\u00f3n.
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Actividades de Apoyo y Respiro Familiar Anualmente celebramos unas jornadas m\u00e9dicas y de respiro familiar, creando un espacio en el que las familias y afectados con el SWH puedan intercambiar experiencias, conocer los avances en la investigaci\u00f3n del SWH, ofrecer informaci\u00f3n en cuanto a terapias y servicios que puedan ser de inter\u00e9s para los asociados. […]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-112","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/pages\/112","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/comments?post=112"}],"version-history":[{"count":0,"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/pages\/112\/revisions"}],"wp:attachment":[{"href":"https:\/\/wolfhirschhorn.com\/sitioweb\/wp-json\/wp\/v2\/media?parent=112"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}